Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data-Reference-Cited by-同舟云学术

Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data

Published:2021-08-05 Issue:8 Volume:4 Page:e2119730
ISSN:2574-3805
Container-title:JAMA Network Open
language:en
Short-container-title:JAMA Netw Open

Author:

Feudtner Chris¹²,Nye Russell¹,Hill Douglas L.¹,Hall Matt³,Hinds Pam⁴⁵,Johnston Emily E.⁶,Friebert Sarah⁷,Hays Ross⁸,Kang Tammy I.⁹,Wolfe Joanne¹⁰¹¹,Crew Karen¹²,Katcoff Hannah¹²,Griffis Heather¹²,Xiao Rae¹²,Catrine Kris¹²,Arevalo-Soriano Tatiana¹²,Beight Leah¹²,Bilodeau Madeline¹²,Chapman Jennifer¹²,Das Porag¹²,Helton Gabrielle¹²,Jenkins Rachel¹²,Kolste Ali¹²,Maglionico Deborah¹²,Martinez Isaac¹²,Mercer Amanda¹²,Morris Ashley¹²,Nelapati Shimei¹²,Porth Rachel¹²,Etsekson Sherr Nicole¹²,Shipman Kelly¹²,Walia Namrata¹²,

Affiliation:

1. Justin Ingerman Center for Palliative Care, The Children’s Hospital of Philadelphia, Philadelphia, Pennsylvania

2. Department of Pediatrics, Medical Ethics and Health Policy, The Perelman School of Medicine at the University of Pennsylvania, Philadelphia

3. Children’s Hospital Association, Lenexa, Kansas

4. Department of Nursing Science, Professional Practice & Quality, Children’s National Hospital, Washington, DC

5. Department of Pediatrics, George Washington University, Washington, DC

6. Division of Hematology and Oncology, Department of Pediatrics, University of Alabama at Birmingham, Birmingham

7. Division of Palliative Care, Department of Pediatrics, Akron Children’s Hospital and Rebecca D. Considine Research Institute, Akron, Ohio

8. Division of Bioethics and Palliative Care, Department of Pediatrics, University of Washington School of Medicine, Seattle

9. Department of Pediatrics, Section of Palliative Care, Texas Children’s Hospital and Baylor College of Medicine, Houston

10. Department of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, Boston, Massachusetts

11. Department of Pediatrics, Boston Children’s Hospital, Boston, Massachusetts

12. for the Pediatric Palliative Care Research Network Shared Data and Research (PPCRN SHARE) Project Group

Publisher

American Medical Association (AMA)

Subject

General Medicine

Link

https://jamanetwork.com/journals/jamanetworkopen/articlepdf/2782718/feudtner_2021_oi_210585_1627485423.65976.pdf

Reference40 articles.

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3. Listening to parents: the role of symptom perception in pediatric palliative home care.;Vollenbroich;Palliat Support Care,2016

4. Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop.;Feudtner;J Pain Symptom Manage,2019

5. Symptoms and distress in children with advanced cancer: prospective patient-reported outcomes from the PediQUEST Study.;Wolfe;J Clin Oncol,2015

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