Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project

Author:

Pereira Stacey1,Smith Hadley Stevens1,Frankel Leslie A.2,Christensen Kurt D.345,Islam Rubaiya1,Robinson Jill Oliver1,Genetti Casie A.67,Blout Zawatsky Carrie L.8,Zettler Bethany8,Parad Richard B.9,Waisbren Susan E.610,Beggs Alan H.6710,Green Robert C.581112,Holm Ingrid A.6710,McGuire Amy L.1,Agrawal Pankaj B.13,Beggs Alan H.13,Betting Wendi N.13,Ceyhan-Birsoy Ozge13,Christensen Kurt D.13,Dukhovny Dmitry13,Fayer Shawn13,Frankel Leslie A.13,Genetti Casie A.13,Graham Chet13,Green Robert C.13,Gutierrez Amanda M.13,Harden Maegan13,Holm Ingrid A.13,Krier Joel B.13,Lebo Matthew S.13,Lee Kaitlyn B.13,Levy Harvey L.13,Lu Xingquan13,Machini Kalotina13,McGuire Amy L.13,Murry Jaclyn B.13,Naik Medha13,Nguyen Dolphyn Tiffany T.13,Parad Richard B.13,Peoples Hayley A.13,Pereira Stacey13,Petersen Devan13,Ramamurthy Uma13,Ramanathan Vivek13,Rehm Heidi L.13,Roberts Amy13,Robinson Jill Oliver13,Roumiantsev Sergei13,Schwartz Talia S.13,Stevens Smith Hadley13,Truong Tina K.13,VanNoy Grace E.13,Waisbren Susan E.13,Yu Timothy W.13,Zawatsky Carrie L. Blout13,Zettler Bethany13,

Affiliation:

1. Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas

2. Department of Psychological, Health, and Learning Sciences, University of Houston, Houston, Texas

3. Department of Population Medicine, Harvard Pilgrim Health Care Institute, Boston, Massachusetts

4. Department of Population Medicine, Harvard Medical School, Boston, Massachusetts

5. Broad Institute of MIT and Harvard, Cambridge, Massachusetts

6. Division of Genetics and Genomics, Boston Children’s Hospital, Boston, Massachusetts

7. The Manton Center for Orphan Disease Research, Boston Children’s Hospital, Boston, Massachusetts

8. Division of Genetics, Department of Medicine, Brigham and Women’s Hospital, Boston, Massachusetts

9. Department of Pediatric Newborn Medicine, Brigham and Women’s Hospital and Harvard Medical School, Boston, Massachusetts

10. Department of Pediatrics, Boston Children’s Hospital and Harvard Medical School, Boston, Massachusetts

11. Precision Population Health Initiative, Ariadne Labs, Boston, Massachusetts

12. Harvard Medical School, Boston, Massachusetts

13. for the BabySeq Project Team

Publisher

American Medical Association (AMA)

Subject

Pediatrics, Perinatology, and Child Health

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