Rethinking Care Models for Young Adults With Sickle Cell Disease-Reference-Cited by-同舟云学术

Rethinking Care Models for Young Adults With Sickle Cell Disease

Published:2023-05-12 Issue:5 Volume:4 Page:e230877
ISSN:2689-0186
Container-title:JAMA Health Forum
language:en
Short-container-title:JAMA Health Forum

Author:

Boucher Alexander A.¹,Lyons Margaret²,McGann Patrick T.²³

Affiliation:

1. Division of Pediatric Hematology and Oncology, Division of Hematology, Oncology, and Transplantation, Departments of Pediatrics and Internal Medicine, University of Minnesota Medical School, Minneapolis, Minnesota

2. Departments of Pediatrics and Medicine, Warren Alpert Medical School of Brown University, Providence, Rhode Island

3. Lifespan Comprehensive Sickle Cell Center, Providence, Rhode Island

Abstract

This Viewpoint discusses developing new sickle cell disease adult care models to support specialized health care homes that are patient-focused and antiracist, rather than an approach focused mainly on financial incentives.

Publisher

American Medical Association (AMA)

Subject

General Earth and Planetary Sciences,General Environmental Science

Link

https://jamanetwork.com/journals/jama-health-forum/articlepdf/2804950/boucher_2023_vp_230007_1683735304.45841.pdf

Reference10 articles.

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2. Transition to adult care in sickle cell disease: a longitudinal study of clinical characteristics and disease severity.;Kayle;Pediatr Blood Cancer,2019

3. Hospital use and mortality in transition-aged patients with sickle cell disease.;Fasipe;Hosp Pediatr,2021

4. Transfer as a component of the transition of adolescents with sickle cell disease to adult care: adolescent, adult, and parent perspectives.;Telfair;J Adolesc Health,1994

5. Psychosocial considerations in sickle cell disease (SCD): the transition from adolescence to young adulthood.;Baskin;J Clin Psychol Med Settings,1998

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