Investigating the Caregiver Burden and Related Factors in Parents of 4 to 12 Years Old Children With Down Syndrome Living in Tehran City, Iran, in 2020

Author:

Alibakhshi Hossein, ,Ayoubi Avaz Karim,Azani Zahra,Ahmadizadeh Zahra,Siminghalam Monia,Tohidast Seyed Abolfazl, , , , ,

Abstract

Objective Having a child with a disability profoundly affects the family and can impose many problems and challenges on parents. Children with Down syndrome (DS) are a large group with special needs at risk for chronic physical illness, developmental problems, and behavioral and emotional problems. These problems create more health and care needs in these children. Therefore, the present study aimed to investigate the caregiver burden and related factors in parents of 4 to 12 years old children with DS living in Tehran City, Iran, in 2020. Materials & Methods In this cross-sectional study, 150 parents (91 females and 59 males) of children with DS participated. They were referred to rehabilitation centers and Down Syndrome Center in Tehran City, Iran, and were selected using a convenience sampling method. The demographic information questionnaire and Novak caregiver burden questionnaire (1989) were used to collect the study data. The participants were asked to complete these questionnaires carefully. The non-parametric tests, including the Mann-Whitney U, Kruskal-Wallis, and Spearman correlation tests, were used to analyze the data in SPSS v. 21 software. Results Based on data analysis, the Mean±SD age of the parents was 38.78±7.92 years. Sixty percent of children with DS were boys, and 40% were girls with a Mean±SD age of 7.14±2.38 years. The mean and standard deviation of the total parental care burden score and its subscales were as follows: overall care burden, 68.12±17.51; temporal care burden, 15.95±5.2; developmental care burden, 15.46±4.84; mental care burden, 12.22±4.85; physical care burden, 11.24±4.47; and social care burden, 11.18±4.94. There was a significant relationship between care burden and the following variables: age of parents (r=-0.66, P=0.001), parents’ income (r=-0.6, P=0.001), number of children (r=0.55, P=0.001), and age of the child (r=0.6, P=0.001). While factors such as parents’ gender, child gender, parents’ marital status, receiving special education, care needs, and care status did not affect the amount of parental care burden (P>0.05). Conclusion The results of the present study showed that parents of children with DS experience moderate care burden in caring for their child. The findings of this study provide the opportunity for relevant government agencies, specialists, and health centers to understand the needs of children with DS and their parents at different stages of the disease, treatment, and care. So they can develop appropriate strategies to reduce the caring stress of their caring parents.

Publisher

Negah Scientific Publisher

Subject

General Medicine

Cited by 1 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3