Effectiveness of a novel multi-modal intervention for family caregivers of persons with age-related macular degeneration: a randomised controlled trial

Author:

Jin Ivan,Kha Richard,Tang Diana,Liew Gerald,Craig Ashley,Burlutsky George,Mitchell Paul,Gopinath Bamini

Abstract

_Purpose: _Age-related macular degeneration (AMD) is a leading cause of visual impairment in older adults. Individuals affected by AMD often require regular physical and emotional support by family caregivers. Carers of people with AMD endure significant physical burden, emotional distress, increased financial stress, and disruptions due to their lifestyle and retirement plans as a direct consequence of the AMD caregiving experience. Despite this, there are currently no interventions targeted towards family caregivers of AMD patients. We evaluated the efficacy of a novel intervention aiming to improve the burden and wellbeing of family carers of persons with age-related macular degeneration (AMD). _Materials and Methods:_ 94 family carers of relatives with AMD were primarily recruited through private eye clinics and randomised to either receive a 10-week intervention of mail-delivered cognitive behavioural therapy (M-CBT) and optional telephone delivered group counselling (n=47); or to a wait-list control group (n=47). Outcome measures were assessed pre-intervention (baseline) and 6-months post-intervention. _Results:_ Intervention participants demonstrated several positive non-significant improvements versus control group at 6-months: burden (_P_=0.53), depressive symptoms (_P_=0.19), general self-efficacy (_P_=0.14), quality of life (_P_=0.17) and fatigue (_P_=0.15). _Discussion: _Study findings demonstrate that combined M-CBT and telephone counselling intervention led to non-significant improvements in outcomes measures such as burden in family carers of persons with AMD.

Publisher

Qeios Ltd

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3