Transitional care management in patients with auto-inflammatory diseases: experience of cooperation of a paediatric and adult centre-Reference-Cited by-同舟云学术

Transitional care management in patients with auto-inflammatory diseases: experience of cooperation of a paediatric and adult centre

Published:2022-01-01 Issue:1 Volume:4 Page:
ISSN:2568-2407
Container-title:Journal of Transition Medicine
language:en
Short-container-title:

Author:

Soscia Francesca¹,Sicignano Ludovico Luca²³,Verrecchia Elena²³,Ardenti Morini Francesca¹,Massaro Maria Grazia²³,Civitelli Fortunata Sabrina¹,Ferrari Federica¹,Rigante Donato²⁴,Cortis Elisabetta¹,Manna Raffaele²^ORCID

Affiliation:

1. Ospedale Sant’Eugenio , Rome , Italy

2. Periodic Fevers and Rare Diseases Research Center, Catholic University , Rome , Italy

3. Department of Geriatrics , Neurosciences and Orthopedics, A. Gemelli Foundation, IRCCS , Rome , Italy

4. Department of Life Sciences and Public Health , Fondazione Policlinico A. Gemelli IRCCS , Rome , Italy

Abstract

Abstract Objectives Auto-inflammatory Diseases (AIDs) are a group of diseases with a strong genetic component, inducing an inappropriate activation of innate immunity. The patients with pediatric onset will face the transitional care (TC) from a pediatrician to an adult care setting, during the critical phase of the adolescence. That implies a risk of failure and drop out, due to the different approach of pediatrician compared to the adult doctor. To describe the model of TC for AIDs from a paediatric to adult centre of two hospitals in Rome, and to pointing out the different steps emerged from specific experiences. Methods In November 2020, a Board of paediatricians and internists discussed their experience to identify “hot topics” for a successful management of TC. Results The Board agreed on the optimal time for the transition (12–18 years). Specific elements to be considered are the reached level of emotional and intellectual maturity, and the clinical stability of the disease. Conclusions The TC of patients with chronic AIDs, requires a strong cooperation to define the adequate follow-up, and to guarantee the compliance to the treatment. This model allows us to investigate AIDs complex cases, requiring a long period of observations.

Publisher

Walter de Gruyter GmbH

Subject

General Medicine

Link

https://www.degruyter.com/document/doi/10.1515/jtm-2021-0007/pdf

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