Non-invasive prenatal testing (NIPT): does the practice discriminate against persons with disabilities?

Author:

Dufner Annette1

Affiliation:

1. Institute of Science and Ethics, University of Bonn , Bonner Talweg 57 , 53113 Bonn , Germany

Abstract

Abstract The most well-known goal of non-invasive prenatal testing (NIPT) is still to determine whether or not a fetus has trisomy 21. Since women often terminate the pregnancy upon a positive result, there is concern that the use of NIPT contributes to discrimination against persons with disabilities. If this concern is justified, it could have an impact on the wider social acceptability of existing testing practices and their potential further expansion. This paper demonstrates four different versions of the discrimination worry, indicates how international policy papers have reacted to them, and identifies the ethically most relevant feature of the concern.

Publisher

Walter de Gruyter GmbH

Subject

Obstetrics and Gynecology,Pediatrics, Perinatology and Child Health

Reference16 articles.

1. German Ethics Council. The future of genetic diagnosis – from research to clinical practice. Opinion. Berlin: German Ethics Council; 2013.

2. Health Council of the Netherlands. NIPT: dynamics and ethics of prenatal screening. Executive summary. Den Haag: Health Council of the Netherlands; 2013.

3. National Consultative Ethics Committee for Life Sciences and Health. Ethical issues in connection with the development of foetal genetic testing in maternal blood. Paris: National Consultative Ethics Committee for Life Sciences and Health; 2013.

4. Nuffield Council on Bioethics. Critical care decisions in fetal and neonatal medicine: ethical issues: a guide to the report. London: Nuffield Council on Bioethics; 2007.

5. Swedish National Council on Medical Ethics. Prenatal diagnosis: the ethics. 2006. Stockholm: Swedish National Council on Medical Ethics; 2017.

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