The future of care and clinical research in autism — recommendations from the 2021 Lancet Commission

Abstract

Abstract At least 78 million people worldwide are affected by autism, a neurodevelopmental disorder characterized by deficits in social interactions, and repetitive behaviors and/or interests. Autism typically manifests in early childhood, and affects social communications and behaviors throughout the lifespan of the individual. Under the umbrella of autism spectrum disorder, it is a highly heterogeneous disorder, with some individuals profoundly affected and needing care every day, while others can live highly independent lives, with some adjustments. The past 60 years has seen a major influx of interest in autism, and significant advances in many areas. However, a large gap remains between current scientific knowledge and the help and support that people with autism and their families need. To address these concerns, the Lancet commissioned a report on the “future of care and clinical research in autism”. The Commission calls for government coordination between health-care, education and social sectors, as well as active participation from people with autism and their families. The Commission proposes personalized, evidence-based assessments and intervention, that is accessible and affordable to all, and call for increased appreciation of neurodiversity and prioritization of research that can improve the lives of people with autism and their families. How to support each and every autistic individual and their families is highly challenging. The 64-page Lancet Commission Report, published on December 2021, was written jointly by 32 authors from 6 continents and 13 disciplines, including clinicians, other health-care providers, researchers, advocates, autistic individuals and their parents.