Adult endocrinologists’ perspectives on transitioning adolescent patients with congenital adrenal hyperplasia-Reference-Cited by-同舟云学术

Adult endocrinologists’ perspectives on transitioning adolescent patients with congenital adrenal hyperplasia

Published:2024-07-16 Issue:8 Volume:37 Page:722-729
ISSN:0334-018X
Container-title:Journal of Pediatric Endocrinology and Metabolism
language:en
Short-container-title:

Author:

Hall Mary-Frances E.¹,Kremen Jessica²,Boskey Elizabeth R.³^ORCID,Tulimat Sam⁴,Staffa Steven J.⁵,Grimstad Frances⁶

Affiliation:

1. Department of Obstetrics and Gynecology , Brigham and Women’s/Massachusetts General Hospital , Boston , MA , USA

2. Division of Pediatric Endocrinology and Diabetes, Department of Pediatrics , University of California , San Francisco , CA , USA

3. Division of Gynecology, Department of Surgery , Boston Children’s Hospital , Boston , MA , USA

4. Harvard University , Boston , MA , USA

5. Department of Anesthesiology, Critical Care and Pain Medicine , Boston Children’s Hospital , Boston , MA , USA

6. Department of Obstetrics, Gynecology, and Reproductive Biology , Harvard Medical School , Boston , MA , USA

Abstract

Abstract Objectives The study aimed to evaluate adult endocrinologists’ perspectives on caring for patients with congenital adrenal hyperplasia (CAH) and views on their transition from pediatric to adult care. Methods An online survey was conducted among adult clinical endocrinologists at Harvard Medical School-affiliated hospitals from March to October 2022. Results Most participants (25/34, 73.5 %) treat patients with CAH and expressed moderate to high confidence (23/32, 71.9 %) in their care. Those that did not treat or accept referrals cited insufficient expertise, knowledge, and resources as reasons. Only half of respondents correctly answered at least 50 % of standard of care questions. The main transition of care barrier identified was the absence of standardized policies (12/34, 35.3 %). Conclusions Participants, though involved in care of patients with CAH, had varied responses to standard of care questions and transition of care barriers, emphasizing the need for standardized transition protocols and additional training to ensure up-to-date clinical knowledge.

Publisher

Walter de Gruyter GmbH

Link

https://www.degruyter.com/document/doi/10.1515/jpem-2024-0158/pdf

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