Challenges and opportunities in measuring the pediatric quality of life: exemplified by research in pediatric gastroenterology

Author:

Lamparyk Katherine1,Burkhart Kimberly2,Buzenski Jessica3,van Tilburg Miranda A.L.456ORCID

Affiliation:

1. Center for Pediatric Behavioral Health, Cleveland, Cleveland Clinic Children’s Hospital, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University, OH, USA

2. Department of Pediatrics, Rainbow Babies and Children’s Hospital, Case Western Reserve University School of Medicine, Cleveland, OH, USA

3. Department of Pediatrics, Emory University School of Medicine, Children’s Healthcare of Atlanta, Atlanta, GA, US

4. Department of Medicine, Division of Gastroenterology and Hepatology, University of North Carolina, Chapel Hill, NC, USA

5. University of Washington, School of Social Work, Seattle, WA, USA

6. Department of Clinical Research, College of Pharmacy & Health Sciences, Campbell University, Buies Creek, NC, USA

Publisher

Informa UK Limited

Subject

Pharmacology (medical),Health Policy,General Medicine

Reference60 articles.

1. Patient-Centered Outcomes Research Institute [Internet] The PCORI Methodology Report. Appendix A: Methodology Standards. PCORI. [Updated 2013 Nov; 2020Jul1]. Available from: https://www.pcori.org/assets/PCORI-Methodology-Standards1.pdf

2. A Review of Patient-Reported Outcome Labels in the United States: 2006 to 2010

3. Centers for Disease Control and Prevention: Health Related QOL (HRQOL) Concepts [Internet]. Atlanta,(GA): CDC; 2018 [cited 2020 Jul 1] Available from: https://www.cdc.gov/hrqol/concept.htm

4. World Health Organization [Internet]. 2020 [cited 2020 Aug 2]. Available from:

5. The PedsQL™* 4.0 as a Pediatric Population Health Measure: Feasibility, Reliability, and Validity

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