The evolving role of patient advocates in rare cancers: opportunities and challenges
Author:
Affiliation:
1. Associazione Paola for Muskulo-Skeletal Tumors – Onlus, Udine, Italy
2. Department of Surgery, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
Publisher
Informa UK Limited
Subject
Pharmacology (medical),Health Policy,General Medicine
Link
https://www.tandfonline.com/doi/pdf/10.1080/14737167.2019.1526083
Reference26 articles.
1. The Burden of Rare Cancers in Europe
2. Epidemiology of rare cancers and inequalities in oncologic outcomes
3. [Cited 2018 Sep 22]. Available from: www.rarecancerseurope.org/
4. Working to improve the management of sarcoma patients across Europe: a policy checklist. BMC Cancer. 2018 Apr 16;18(1):424.
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