An inductive qualitative content analysis of stigma experienced by people with rare diseases
Author:
Affiliation:
1. Department of Psychological, Health, & Learning Sciences, University of Houston, Houston, TX, USA
2. School of Psychological Science, Oregon State University, Corvallis, OR, USA
Publisher
Informa UK Limited
Subject
Public Health, Environmental and Occupational Health,Applied Psychology,Management Science and Operations Research,Mechanical Engineering,Energy Engineering and Power Technology
Link
https://www.tandfonline.com/doi/pdf/10.1080/08870446.2021.1912344
Reference32 articles.
1. Experiences of stigma over the lifetime of people with xeroderma pigmentosum: A qualitative interview study in the United Kingdom
2. The relationship between symptom severity, stigma, illness intrusiveness and depression in Mal de Debarquement Syndrome
3. Benefits of support conferences for parents of and people with Moebius syndrome.
4. Health-related quality of life among adults with diverse rare disorders
5. Social interaction experiences of adults with Moebius Syndrome: A focus group
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