Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire: a 46-item measure of treatment burden for parent/carers of children with CF-Reference-Cited by-同舟云学术

Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire: a 46-item measure of treatment burden for parent/carers of children with CF

Published:2022-03-08 Issue: Volume: Page:1-25
ISSN:0887-0446
Container-title:Psychology & Health
language:en
Short-container-title:Psychology & Health

Author:

Glasscoe Claire¹,Hope Holly F.²,Lancaster Gillian A.³,McCray Gareth³,West Kiri⁴,Patel Latifa⁵,Patel Tulsi⁶,Hill Jonathan⁷,Quittner Alexandra L.⁸,Southern Kevin W.¹

Affiliation:

1. Institute of Translational Medicine, Department of Women’s & Children’s Health, University of Liverpool, Liverpool, UK

2. Division of Psychology & Mental Health, University of Manchester, Manchester, UK

3. School of Medicine, Keele University, Keele, UK

4. DMOPS (Movement Disorders), Liverpool University Hospitals NHS Foundation Trust (Aintree site), Liverpool, UK

5. Respiratory Unit, Alder Hey Children’s NHS Foundation Trust, Liverpool, UK

6. Evelina London Children’s Hospital, London, UK

7. School of Psychology & Clinical Language Sciences, University of Reading, Reading, UK

8. Children’s Research Institute, Miami Children’s Hospital, Miami, Florida, USA

Funder

Alder Hey Children's NHS Foundation Trust

Publisher

Informa UK Limited

Subject

Public Health, Environmental and Occupational Health,Applied Psychology,Management Science and Operations Research,Mechanical Engineering,Energy Engineering and Power Technology

Link

https://www.tandfonline.com/doi/pdf/10.1080/08870446.2021.2013483

Reference46 articles.

1. The expansion and performance of national newborn screening programmes for cystic fibrosis in Europe

2. Development and Validation of the Parent Experience of Child Illness

3. The Caregiver Strain Questionnaire

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1. Standards for the care of people with cystic fibrosis; establishing and maintaining health;Journal of Cystic Fibrosis;2023-12

2. Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child;Psychology & Health;2023-07-05

3. A Partial Picture, Without a Frame: Measuring Quality of Life in Cystic Fibrosis Caregivers;American Journal of Health Education;2023-03-31

4. Adverse Childhood Experiences (ACEs) in Adults with Cystic Fibrosis;Psychology Research and Behavior Management;2022-06