Participant perspectives on a phase I/II ocular gene therapy trial (NCT02077361)
Author:
Affiliation:
1. Faculty of Medicine and Dentistry, Edmonton, Alberta, Canada
2. Shirley Ryan AbilityLab, Chicago, Illinois, USA
3. Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada
Funder
Alberta Innovates - Health Solutions
Canadian Institutes of Health Research
Foundation Fighting Blindness
Publisher
Informa UK Limited
Subject
Genetics (clinical),Ophthalmology,Pediatrics, Perinatology and Child Health
Link
https://tandfonline.com/doi/pdf/10.1080/13816810.2019.1630843
Reference30 articles.
1. FDA. c. 2017: FDA News Release - FDA approves novel gene therapy to treat patients with a rare form of inherited vision loss. www.fda.gov [Internet]. Maryland, United States; 2017 Dec 19 [accessed 2018 Mar 22]; [1 screen]. https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm589467.htm.
2. Gene Transfer and the Ethics of First-in-Human Research
3. Communicating the Promise for Ocular Gene Therapies: Challenges and Recommendations
4. Supporting positive experiences and sustained participation in clinical trials: looking beyond information provision
5. Patient–physician communication concerning participation in cancer chemotherapy trials
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