<i>It's bittersweet, it's uncomfortable, yes, but it's necessary.</i> Methodological reflections on the experiences of young adults with life-shortening conditions on being involved in inclusive qualitative research-Reference-Cited by-同舟云学术

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It's bittersweet, it's uncomfortable, yes, but it's necessary. Methodological reflections on the experiences of young adults with life-shortening conditions on being involved in inclusive qualitative research

Published:2024-08-19 Issue: Volume: Page:1-8
ISSN:0969-9260
Container-title:Progress in Palliative Care
language:en
Short-container-title:Progress in Palliative Care

Author:

Earle Sarah¹^ORCID,Blackburn Maddie¹,Chambers Lizzie²,Downing Julia³,Flemming Kate⁴,Hale Jamie⁵,Marston Hannah R.¹,O’Dell Lindsay¹,Sinason Valerie⁶

Affiliation:

1. Nottingham Trent University, UK

2. Together for Short Lives, UK

3. International Children’s Palliative Care Network, UK/South Africa

4. University of York, UK

5. Expert by Experience, UK

6. Independent researcher, UK

Publisher

Informa UK Limited

Link

https://www.tandfonline.com/doi/pdf/10.1080/09699260.2024.2375823

Reference42 articles.

1. Barriers to research in palliative care: A systematic literature review

2. The fallacy of the instrumental gate? Contextualising the process of gaining access through gatekeepers

3. Recruiting young people to sensitive research: turning the ‘wheels within wheels’

4. Key challenges and ways forward in researching the ‘good death’: qualitative in-depth interview and focus group study;Kendall M;BMJ,2007

5. Involving young people with life-limiting conditions in research on sex: the intersections of taboo and vulnerability

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