Health-related quality of life in children and adolescents living with Gaucher disease and their parents-Reference-Cited by-同舟云学术

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Health-related quality of life in children and adolescents living with Gaucher disease and their parents

Published:2018-01-01 Issue:1 Volume:6 Page:79-92
ISSN:2164-2850
Container-title:Health Psychology and Behavioral Medicine
language:en
Short-container-title:Health Psychology and Behavioral Medicine

Author:

Remor Eduardo¹²^ORCID,Baldellou Antonio³

Affiliation:

1. Faculty of Psychology, Universidad Autónoma de Madrid, Madrid, Spain

2. Institute of Psychology, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brazil

3. Unidad de Enfermedades Metabólicas, Hospital Universitario “Miguel Servet”, Zaragoza, Spain

Funder

Conselho Nacional de Desenvolvimento Científico e Tecnológico

Bolsista de Produtividade em Pesquisa do CNPq – Nível 2

Publisher

Informa UK Limited

Subject

Behavioral Neuroscience,General Psychology,Health(social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/21642850.2018.1462705

Reference31 articles.

1. Paediatric non-neuronopathic Gaucher disease: recommendations for treatment and monitoring

2. The Psychosocial Impact of Fabry Disease on Pediatric Patients

3. Neurological evaluation of patients with Gaucher disease diagnosed as type 1

4. Quality of life in rare genetic conditions: A systematic review of the literature

Cited by 9 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Identification of patient-reported outcomes measures (PROMs) and patient-reported experiences measures (PREMs) in Gaucher disease in Spain;Medicina Clínica;2024-08

2. Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains;Orphanet Journal of Rare Diseases;2024-07-04

3. Neuronopathic Gaucher disease: Rare in the West, common in the East;Journal of Inherited Metabolic Disease;2024-05-20

4. Development and evaluation of a patient-reported outcome measure specific for Gaucher disease with or without neurological symptoms in Japan;Orphanet Journal of Rare Diseases;2024-01-05

5. Burden of caregivers of patients with neuronopathic and non-neuronopathic Gaucher disease in Japan: A survey-based study;Molecular Genetics and Metabolism Reports;2023-09

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