Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders
Author:
Affiliation:
1. School of Nursing and Midwifery, Faculty of Health, Community and Education, Mount Royal University, Calgary, Alberta, Canada
Funder
Mount Royal University internal review grant fund
Mount Royal University Faculty of Health, Community and Education Innovation Fund
Publisher
Informa UK Limited
Subject
Health Policy,Fundamentals and skills,Gerontology,Issues, ethics and legal aspects
Link
https://www.tandfonline.com/doi/pdf/10.1080/17482631.2020.1725362
Reference56 articles.
1. Antonelli, R. C., Browning, D. M., Hackett-Hunter, P., McAllister, J. W. & Risko, W. (2012). Pediatric care coordination curriculum. Retrieved from http://resourcehub.practiceinnovationco.org/wp-content/uploads/2016/12/PediatricCareCoordCurriculum.pdf
2. Children with neurodevelopmental disorders and disabilities: a population-based study of healthcare service utilization using administrative data
3. Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity
4. Alone in a Crowd? Parents of Children with Rare Diseases’ Experiences of Navigating the Healthcare System
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