Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care
Author:
Affiliation:
1. Stanford University School of Medicine
2. Indiana University School of Medicine
3. Charles Warren Fairbanks Center for Medical Ethics
4. Case Western Reserve University School of Medicine
Publisher
Informa UK Limited
Subject
Health Policy,Issues, ethics and legal aspects
Link
https://www.tandfonline.com/doi/pdf/10.1080/15265161.2023.2207500
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1. Lack of genotype–phenotype correlations and outcome in MCAD deficiency diagnosed by newborn screening in New York State
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