Academic and Private Partnership to Improve Informed Consent Forms Using a Data Driven Approach
Author:
Affiliation:
1. Janssen Research and Development LLC
2. University of Pennsylvania
Funder
Janssen Research and Development LLC
Publisher
Informa UK Limited
Subject
Health Policy,Issues, ethics and legal aspects
Link
https://www.tandfonline.com/doi/pdf/10.1080/15265161.2023.2250330
Reference12 articles.
1. Albala I. M. Doyle and P. S. Appelbaum. 2016. The evolution of consent forms for research: A quarter century of changes. IRB 32 (3):7–11. https://www.thehastingscenter.org/irb_article/the-evolution-of-consent-forms-for-research-a-quarter-century-of-changes/.
2. Bibbins-Domingo, K., and A. Helman, eds. 2022. Improving representation in clinical trials and research: Building research equity for women and underrepresented groups. Washington, D.C.: National Academies Press.
3. Whatever happened to short informed consent documents?;Cooper J. A.;Journal of Empirical Research on Human Research Ethics,2019
4. Enhancing Diversity and Inclusion in Clinical Trials
5. Emanuel E. J. and C. W. Boyle. 2021. Assessment of length and readability of informed consent documents for COVID-19 vaccine trials. JAMA Network Open 4 (4):e2110843. Accessed March 9 2023. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2779247.
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