Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?-Reference-Cited by-同舟云学术

Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?

Published:2023-11-27 Issue: Volume: Page:1-14
ISSN:1526-5161
Container-title:The American Journal of Bioethics
language:en
Short-container-title:The American Journal of Bioethics

Author:

Chapman Carolyn Riley¹^ORCID,Quinn Gwendolyn P.¹^ORCID,Natri Heini M.²^ORCID,Berrios Courtney³⁴^ORCID,Dwyer Patrick⁵^ORCID,Owens Kellie¹^ORCID,Heraty Síofra⁶^ORCID,Caplan Arthur L.¹^ORCID

Affiliation:

1. NYU Grossman School of Medicine

2. The Translational Genomics Research Institute

3. Children’s Mercy Kansas City

4. University of Missouri-Kansas City School of Medicine

5. University of California, Davis

6. Birkbeck, University of London

Publisher

Informa UK Limited

Subject

Health Policy,Issues, ethics and legal aspects

Link

https://www.tandfonline.com/doi/pdf/10.1080/15265161.2023.2276161

Reference127 articles.

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2. Akselrod O. 2021. How artificial intelligence can deepen racial and economic inequalities. American Civil Liberties Union (ACLU) website July 13. Accessed April 13 2023. https://www.aclu.org/news/privacy-technology/how-artificial-intelligence-can-deepen-racial-and-economic-inequities.

3. False Hopes and Best Data: Consent to Research and the Therapeutic Misconception

4. Tribal IRBs: A Framework for Understanding Research Oversight in American Indian and Alaska Native Communities

5. Bailey S. 2021. Stop spectrum 10K. change.org website. Accessed April 13 2023. https://www.change.org/p/university-of-cambridge-stop-spectrum-10k.

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