Grounded in Reality: Integrating Community Values and Priorities of End Users in Human Gene Editing-Reference-Cited by-同舟云学术

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Grounded in Reality: Integrating Community Values and Priorities of End Users in Human Gene Editing

Published:2024-08-02 Issue:8 Volume:24 Page:43-45
ISSN:1526-5161
Container-title:The American Journal of Bioethics
language:en
Short-container-title:The American Journal of Bioethics

Author:

Riggan Kirsten A.¹^ORCID,Feys Roel²,Kokayi Assata¹^ORCID,Meagher Karen M.¹^ORCID,Michie Marsha³^ORCID,Musunuru Kiran⁴^ORCID,Ormond Kelly E.⁵^ORCID,Schelhaas Andrea J.⁶^ORCID,Yap Jane Q.¹,Isasi Rosario²^ORCID,Allyse Megan A.¹^ORCID

Affiliation:

1. Biomedical Ethics Program, Mayo Clinic

2. Miller School of Medicine, University of Miami

3. Case Western Reserve University School of Medicine

4. Perelman School of Medicine, University of Pennsylvania

5. Health Ethics and Policy Lab, ETH-Zurich

6. Nemours Children’s Health

Funder

National Human Genome Research Institute

Publisher

Informa UK Limited

Link

https://www.tandfonline.com/doi/pdf/10.1080/15265161.2024.2361880

Reference9 articles.

1. Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

2. What is a ‘serious’ genetic condition? The perceptions of people living with genetic conditions

3. Factors influencing patients’ decision-making about preimplantation genetic testing for monogenic disorders

4. Perceptions of airway gene therapy for cystic fibrosis

5. The views of people with a lived experience of deafness and the general public regarding genetic testing for deafness in the reproductive setting: A systematic review

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