Integrating Supported Decision-Making into the Clinical Research Process-Reference-Cited by-同舟云学术

Integrating Supported Decision-Making into the Clinical Research Process

Published:2021-10-28 Issue:11 Volume:21 Page:32-35
ISSN:1526-5161
Container-title:The American Journal of Bioethics
language:en
Short-container-title:The American Journal of Bioethics

Author:

Bierer Barbara E.¹²,Ne’eman Ari³,DeCormier Plosky Willyanne¹,Strauss David H.¹⁴,Silverman Benjamin C.⁵,Stein Michael Ashley³

Affiliation:

1. Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard

2. Brigham and Women’s Hospital and Harvard Medical School

3. Harvard Law School

4. Columbia University

5. Mass General Brigham

Publisher

Informa UK Limited

Subject

Health Policy,Issues, ethics and legal aspects

Link

https://www.tandfonline.com/doi/pdf/10.1080/15265161.2021.1980141

Reference9 articles.

1. Department of Health and Human Services (HHS) of the United States of America. 2021. Know the rights that protect individuals with disabilities from discrimination. Accessed August 3, 2021. https://www.hhs.gov/sites/default/files/knowyourrights504adafactsheet.pdf

2. Department of Health and Human Services (HHS). 2018. Code of Federal Regulations. 45 Part 46. Protection of Human Subjects. Accessed August 25, 2021. https://www.hhs.gov/ohrp/regulations-and-policy/regulations/45-cfr-46/revised-common-rule-regulatory-text/index.html#46.116

3. Where are persons with intellectual disabilities in medical research? A survey of published clinical trials

4. Is It Worth It? Benefits in Research With Adults With Intellectual Disability

5. What Is Right? Ethics in Intellectual Disabilities Research

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2. Implementing supported decision making in clinical research;International Journal of Geriatric Psychiatry;2022-12-09

3. Excluding People With Disabilities From Clinical Research: Eligibility Criteria Lack Clarity And Justification;Health Affairs;2022-10-01

4. An Externalist, Process-Based Approach to Supported Decision-Making;The American Journal of Bioethics;2022-09-28

5. IRBs and the Protection-Inclusion Dilemma: Finding a Balance;The American Journal of Bioethics;2022-04-28