Integrating Supported Decision-Making into the Clinical Research Process
Author:
Affiliation:
1. Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard
2. Brigham and Women’s Hospital and Harvard Medical School
3. Harvard Law School
4. Columbia University
5. Mass General Brigham
Publisher
Informa UK Limited
Subject
Health Policy,Issues, ethics and legal aspects
Link
https://www.tandfonline.com/doi/pdf/10.1080/15265161.2021.1980141
Reference9 articles.
1. Department of Health and Human Services (HHS) of the United States of America. 2021. Know the rights that protect individuals with disabilities from discrimination. Accessed August 3, 2021. https://www.hhs.gov/sites/default/files/knowyourrights504adafactsheet.pdf
2. Department of Health and Human Services (HHS). 2018. Code of Federal Regulations. 45 Part 46. Protection of Human Subjects. Accessed August 25, 2021. https://www.hhs.gov/ohrp/regulations-and-policy/regulations/45-cfr-46/revised-common-rule-regulatory-text/index.html#46.116
3. Where are persons with intellectual disabilities in medical research? A survey of published clinical trials
4. Is It Worth It? Benefits in Research With Adults With Intellectual Disability
5. What Is Right? Ethics in Intellectual Disabilities Research
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