Appropriate inclusion of adult research participants with intellectual disability: an in-depth review of guidelines and policy statements

Author:

Meierer Klara1ORCID,Borry Pascal2ORCID,Sanchini Virginia23ORCID

Affiliation:

1. Faculty of Medicine and Health Sciences, Department of Psychiatry, McGill University, Montreal Quebec, Canada

2. Department of Public Health and Primary Care, Center for Biomedical Ethics and Law, Leuven, Belgium

3. Department of Oncology and Hemato-Oncology, University of Milan, Milan, Italy

Funder

no funding associated with the work featured in this

Publisher

Informa UK Limited

Subject

Library and Information Sciences,Education,General Medicine

Reference67 articles.

1. AAIDD (American Association on Intellectual and Developmental Disabilities). 2022. “Defining Criteria for Intellectual Disability.” American Association on Intellectual and Developmental Disabilities. https://www.aaidd.org/intellectual-disability/definition

2. What to tell and how to tell: a qualitative study of information sharing in research for adults with intellectual disability

3. Diagnostic and Statistical Manual of Mental Disorders

4. Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome

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