Research ethics review for the use of anonymized samples and data: A systematic review of normative documents
Author:
Affiliation:
1. Department of Philosophy, Johns Hopkins University, Baltimore, USA
2. Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium
Funder
Fonds Wetenschappelijk Onderzoek
Publisher
Informa UK Limited
Subject
Library and Information Sciences,Education,General Medicine
Link
https://www.tandfonline.com/doi/pdf/10.1080/08989621.2017.1396896
Reference18 articles.
1. Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection
2. Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries
3. Potential harms, anonymization, and the right to withdraw consent to biobank research
4. Data storage and DNA banking for biomedical research: technical, social and ethical issues
5. Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel
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