Patients and family attitudes about clinical and research sharing of electronic clinical data

Author:

Koposov Roman1,Stien Line2,Clausen Carolyn2,Leventhal Bennett3,Westbye Odd Sverre24,Nytrø Øystein5,Koochakpour Kaban5,Pant Dipendra5,Røst Thomas Brox4,Mandahl Arthur6,Hafstad Hege6,Skokauskas Norbert2

Affiliation:

1. Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU), Northern Norway, Faculty of Health Sciences, UiT - The Arctic University of Norway, Tromsø, Norway

2. RKBU, Central Norway, Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway

3. The University of Chicago, Chicago, IL, United States

4. Department of Child and Adolescent Psychiatry, St. Olavs Hospital, Trondheim, Norway

5. Department of Computer Science, Norwegian University of Science and Technology, Trondheim, Norway

6. Vårres regional user-led center Mid-Norway, Trondheim, Norway

Funder

the Research Council of Norway/Norges forskningsråd

Publisher

Informa UK Limited

Reference22 articles.

1. Brage S Thune O. Young disability and mental illness (In Norwegian). Arbeid og velferd. 2015. http://www.ung-uforhet-og-psykisk-sykdom.pdf

2. Folkehelsemeldingen—Mestring og muligheter. Meld. St. 19 (2014-2015) - regjeringen.no. 2015. https://www.regjeringen.no/no/dokumenter/meld.-st.-19-2014-2015/id2402807/sec3?q=livsgledesykehjem

3. Institute of Public Health (FHI). Psykiske plager og lidelser hos barn og unge (in Norwegian). 2023. https://www.fhi.no/he/folkehelserapporten/psykisk-helse/psykisk-helse-hos-barn-og-unge/?term=.

4. Prevalence of psychiatric disorders in Norwegian 10-14-year-olds: Results from a cross-sectional study

5. Local, Early, and Precise: Designing a Clinical Decision Support System for Child and Adolescent Mental Health Services

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