Obstacles to use of patient expertise to improve care: a co-produced longitudinal study of the experiences of young people with sickle cell disease in non-specialist hospital settings
Author:
Affiliation:
1. Department of Public Health, Environments and Society, London School of Hygiene & Tropical Medicine, London, UK
2. Broken Silence Charitable Organisation, London, UK
3. London, UK
Funder
Health Services and Delivery Research Programme
Publisher
Informa UK Limited
Subject
Public Health, Environmental and Occupational Health
Link
https://www.tandfonline.com/doi/pdf/10.1080/09581596.2019.1650893
Reference54 articles.
1. Race and social attitudes about sickle cell disease
2. Sickle Cell Disease and the “Difficult Patient” Conundrum
3. Coming of Age With Sickle Cell Disease and the Role of Patient as Teacher
4. The participation of children and young people in decisions about UK service development
5. Patient-reported experience measure in sickle cell disease
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