Making orphan drugs and services available and accessible for people who live with rare diseases: what has been done? a systematic scoping review-Reference-Cited by-同舟云学术

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Making orphan drugs and services available and accessible for people who live with rare diseases: what has been done? a systematic scoping review

Published:2022-12-02 Issue:1 Volume:10 Page:55-64
ISSN:2167-8707
Container-title:Expert Opinion on Orphan Drugs
language:en
Short-container-title:Expert Opinion on Orphan Drugs

Author:

Ghiasvand Hesam¹,Barnish Maxwell S.²,Moradi Tayebeh³,Nikram Elham²,Naghdi Seyran⁴

Affiliation:

1. Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK

2. Peninsula Technology Assessment Group (PenTAG), University of Exeter, Exeter UK

3. Department of Health Services Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran

4. Clinical Trials Unit, Warwick Medical School, University of Warwick, Coventry, UK

Funder

No funding

Publisher

Informa UK Limited

Subject

Pharmacology (medical),Health Policy,Pharmacology, Toxicology and Pharmaceutics (miscellaneous)

Link

https://www.tandfonline.com/doi/pdf/10.1080/21678707.2022.2153671

Reference68 articles.

1. Rare disease policies to improve care for patients in Europe

2. Financing translation: Analysis of the NCATS rare-diseases portfolio

3. A cross-national comparative study of orphan drug policies in the United States, the European Union, and Japan: Towards a made-in-China orphan drug policy

4. The Orphan Drug Act at 35: Observations and an Outlook for the Twenty-First Century

5. Improving market access to rare disease therapies: A worldwide perspective with recommendations to the industry

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1. Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study;Future Rare Diseases;2024-07-03

2. Challenges and Future Opportunities in Rare Genetic Disorders: A Comprehensive Review;Rare Genetic Disorders;2024

3. Effect of the copayment reduction system on accessibility to orphan drugs in South Korea;Expert Review of Pharmacoeconomics & Outcomes Research;2023-03-20

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