1. Tizard Centre, University of Kent, Canterbury, United Kingdom
2. Morriston Hospital, Swansea, Wales, United Kingdom
3. Palliative and Supportive Care Service, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland
4. Department of Neurology, Antwerp University, Antwerpen, Belgium
5. LOROS Hospice, Leicester, United Kingdom
6. Cicely Saunders Institute of Palliative Care, Policy and Rehabilitation, King’s College, London, United Kingdom
7. Institute of Nursing Sciences and Practice, Paracelsus Medical University, Salzburg, Austria
8. Severn Hospice, Shrewsbury, United Kingdom
9. Department of Neurology, Amsterdam University Medical Centre, Amsterdam, The Netherlands
10. Department of Neurology, General Hospital AZ Sint Jan, Bruges, Belgium
11. Department of Palliative Medicine, University Hospital, Cologne, Germany
12. Department of Research in Palliative Care, Fondazione FARO, Turin, Italy