A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey-Reference-Cited by-同舟云学术

A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey

Published:2022-11-04 Issue:3-4 Volume:24 Page:272-280
ISSN:2167-8421
Container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
language:en
Short-container-title:Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Author:

Boyce Danielle¹,Robinson Michael²,Cedarbaum Jesse M.³⁴,Shank Lisa M.⁵^ORCID,McDermott Christopher J.⁶^ORCID,van Eijk Ruben P. A.⁷⁸^ORCID

Affiliation:

1. Johns Hopkins University School of Medicine, Baltimore, MD, USA

2. Independent ALS Patient Advocate, Denver, CO, USA

3. Coeruleus Clinical Sciences, Woodbridge, CT, USA

4. Yale School of Medicine, New Haven, CT, USA

5. Independent researcher, Glen Burnie, MD, USA

6. Department of Neuroscience, The University of Sheffield, Sheffield, South Yorkshire, UK

7. Department of Neurology, UMC, Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, the Netherlands

8. Biostatistics & Research Support, Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the Netherlands

Publisher

Informa UK Limited

Subject

Neurology (clinical),Neurology

Link

https://www.tandfonline.com/doi/pdf/10.1080/21678421.2022.2140592

Reference26 articles.

1. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function

2. An old friend who has overstayed their welcome: the ALSFRS-R total score as primary endpoint for ALS clinical trials

3. The ALSFRSr predicts survival time in an ALS clinic population

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