Living beyond loss: a qualitative investigation of caregivers’ experiences after the death of their relatives with amyotrophic lateral sclerosis
Author:
Affiliation:
1. Department of Psychology, Università Cattolica del Sacro Cuore, Milan, Italy and
2. Heart-Respiratory Rehabilitation Unit, IRCCS Fondazione Don Carlo Gnocchi, Milan, Italy
Publisher
Informa UK Limited
Subject
Neurology (clinical),Neurology
Link
https://www.tandfonline.com/doi/pdf/10.1080/21678421.2023.2255628
Reference40 articles.
1. Psychological wellbeing and quality of life in amyotrophic lateral sclerosis: A review
2. Mutual support groups for family caregivers of people with amyotrophic lateral sclerosis in Italy: A pilot study
3. Schischlevskij P Cordts I Günther R Stolte B Zeller D Schröter C et al. Informal caregiving in Amyotrophic Lateral Sclerosis (ALS): a high caregiver burden and drastic consequences on Caregivers’ Lives. 2021;
4. What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?
5. Caregiver time use in ALS
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