“I Want to Do It, But I Want to Make Sure That I Do It Right.” Views of Patients with Parkinson’s Disease Regarding Early Stem Cell Clinical Trial Participation
Author:
Affiliation:
1. Division of Medical Ethics, Weill Cornell Medical College, New York, New York, USA;
2. Department of Psychology, The New School for Social Research, New York, New York, USA
Publisher
Informa UK Limited
Subject
Health Policy,Philosophy,Health (social science)
Link
https://www.tandfonline.com/doi/pdf/10.1080/23294515.2020.1775721
Reference52 articles.
1. Study design attributes influenced patients' willingness to participate in clinical research: a randomized vignette-based study
2. Early termination of cardiovascular trials as a consequence of poor accrual: analysis of ClinicalTrials.gov 2006–2015
3. The Challenges of First-in-Human Stem Cell Clinical Trials: What Does This Mean for Ethics and Institutional Review Boards?
4. Human Trials of Stem Cell-Derived Dopamine Neurons for Parkinson’s Disease: Dawn of a New Era
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1. More than a participant in trials of cell and gene therapy: Hearing the voices of people living with neurodegenerative diseases;International Review of Neurobiology;2022
2. Bringing Advanced Therapies for Parkinson’s Disease to the Clinic: An Analysis of Ethical Issues;Journal of Parkinson's Disease;2021-09-22
3. Perceptions about Research Participation among Individuals at Risk and Individuals with Premanifest Huntington’s Disease: A Survey Conducted by the European Huntington Association;Journal of Personalized Medicine;2021-08-20
4. Patient and public perspectives on cell and gene therapies: a systematic review;Nature Communications;2020-12
5. Comparison of Patient and Expert Perceptions of the Attainment of Research Milestones in Parkinson's Disease;Movement Disorders;2020-10
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