Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects’ Recall of Informed Consent and Motivations for Participation

Author:

Wexler Anna1ORCID,Choi Rebekah J.1,Ramayya Ashwin G.2,Sharma Nikhil2,McShane Brendan J.2,Buch Love Y.2,Donley-Fletcher Melanie P.3,Gold Joshua I.4,Baltuch Gordon H.2,Goering Sara56ORCID,Klein Eran567ORCID

Affiliation:

1. Department of Medical Ethics and Health Policy, University of Pennsylvania, Philadelphia, Pennsylvania, USA;

2. Department of Neurosurgery, University of Pennsylvania, Philadelphia, Pennsylvania, USA;

3. Specialty Care, Inc., Brentwood, California, USA;

4. Department of Neuroscience, University of Pennsylvania, Philadelphia, Pennsylvania, USA;

5. Center for Neurotechnology, University of Washington, Seattle, Washington, USA;

6. Department of Philosophy, University of Washington, Seattle, Washington, USA;

7. Department of Neurology, Oregon Health and Science University, Portland, Oregon, USA

Funder

National Institute of Neurological Disorders and Stroke

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

Reference43 articles.

1. Why healthy subjects volunteer for phase I studies and how they perceive their participation?

2. False Hopes and Best Data: Consent to Research and the Therapeutic Misconception

3. BRAIN Initiative. 2014. Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Working Group. “Brain 2025: A Scientific Vision.” National Institutes of Health. https://braininitiative.nih.gov/sites/default/files/pdfs/brain2025_508c.pdf.

4. BRAIN Initiative. 2019. Advisory Committee to the NIH Director BRAIN Initiative Working Group 2.0. “The Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative 2.0: From Cells to Circuits, Toward Cures.” National Institutes of Health. https://braininitiative.nih.gov/sites/default/files/images/brain_2.0_6-6-19-final_revised10302019_508c.pdf.

5. Neurosurgical Patients as Human Research Subjects: Ethical Considerations in Intracranial Electrophysiology Research

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