The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease-Reference-Cited by-同舟云学术

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The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease

Published:2020-10-01 Issue:4 Volume:11 Page:195-207
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Desine Stacy¹,Hollister Brittany M.¹^ORCID,Abdallah Khadijah E.¹,Persaud Anitra¹,Hull Sara Chandros²³^ORCID,Bonham Vence L.¹^ORCID

Affiliation:

1. Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA

2. Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA

3. Bioethics Core, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA

Funder

Division of Intramural Research, National Human Genome Research Institute

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2020.1818876

Reference45 articles.

1. The Many Facets of Genetic Literacy: Assessing the Scalability of Multiple Measures for Broad Use in Survey Research

2. The Belmont Report at 40: Reckoning With Time

3. False Hopes and Best Data: Consent to Research and the Therapeutic Misconception

4. The Effect of Structural Violence on Patients with Sickle Cell Disease

5. CRISPR/Cas9 genome editing in human hematopoietic stem cells

Cited by 10 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Assessing Psychosocial Risk and Resilience to Support Readiness for Gene Therapy in Sickle Cell Disease;JAMA Network Open;2024-08-21

2. Gene therapies on the horizon for sickle cell disease: a clinician’s perspective;Expert Review of Hematology;2024-07-31

3. CRISPR-Based Therapies: Revolutionizing Drug Development and Precision Medicine;Current Gene Therapy;2024-06

4. The role of ethicists in pediatric hematology/oncology: Current status and future needs;Pediatric Blood & Cancer;2022-12-10

5. Ethical Challenges and Controversies in the Practice and Advancement of Gene Therapy;Advances in Cell and Gene Therapy;2022-08-24

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