Incorporating Biobank Consent into a Healthcare Setting: Challenges for Patient Understanding-Reference-Cited by-同舟云学术

Incorporating Biobank Consent into a Healthcare Setting: Challenges for Patient Understanding

Published:2020-12-04 Issue:2 Volume:12 Page:113-122
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Kasperbauer T. J.¹²,Schmidt Karen K.¹²,Thomas Ariane¹²,Perkins Susan M.³,Schwartz Peter H.¹²⁴

Affiliation:

1. Center for Bioethics, Indiana University School of Medicine, Indianapolis, Indiana, USA

2. Department of Medicine, Indiana University School of Medicine, Indianapolis, Indiana, USA

3. Biostatistics, Indiana University School of Medicine, Indianapolis, Indiana, USA

4. School of Liberal Arts, Indiana University – Purdue University at Indianapolis, Indianapolis, Indiana, USA

Funder

Indiana University Precision Health Initiative

Indiana Clinical and Translational Sciences Institute

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health(social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2020.1851313

Reference39 articles.

1. Agency for Healthcare Research and Quality. 2018. How to improve informed consent and authorization. https://www.ahrq.gov/funding/policies/informedconsent/ictoolkit2.html

2. The “All of Us” Research Program

3. Ignorance Isn’t Bliss: Retaining a Meaningful Comprehension Requirement for Consent to Research

4. Informed consent for biobanking: consensus-based guidelines for adequate comprehension

5. Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention

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