Assessment of the All of Us research program’s informed consent process-Reference-Cited by-同舟云学术

Assessment of the All of Us research program’s informed consent process

Published:2020-12-04 Issue:2 Volume:12 Page:72-83
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Doerr Megan¹^ORCID,Moore Sarah¹^ORCID,Barone Vanessa¹^ORCID,Sutherland Scott²³,Bot Brian M.¹^ORCID,Suver Christine¹^ORCID,Wilbanks John¹^ORCID

Affiliation:

1. Sage Bionetworks, Seattle, Washington

2. Broad Institute, Cambridge, Massachusetts

3. Vibrent Health, Fairfax, Virginia

Funder

Centers for Medicare and Medicaid Services

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health(social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2020.1847214

Reference36 articles.

1. The Low Literate Consumer

2. Anderson, M., and M. Kumar. 2019. Digital divide persists even as lower-income Americans make gains in tech adoption. Pew Research Center. https://www.pewresearch.org/fact-tank/2019/05/07/digital-divide-persists-even-as-lower-income-americans-make-gains-in-tech-adoption/.

3. Development and Validation of a Short-Form, Rapid Estimate of Adult Literacy in Medicine

4. Bailey, M. J., and S. M. Dynarski. 2011. Gains and gaps: Changing inequality in U.S. College Entry and Completion. National Bureau of Economic Research (NBER) Working Paper No. 17633. https://www.nber.org/papers/w17633.pdf.

Cited by 24 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Opportunities and challenges of a dynamic consent-based application: personalized options for personal health data sharing and utilization;BMC Medical Ethics;2024-08-31

2. Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality;Journal of Clinical Oncology;2024-08-02

3. Implementing an educational resource for patients participating in cancer clinical trials during the pandemic;British Journal of Nursing;2024-05-23

4. Building a digital health research platform to enable recruitment, enrollment, data collection and follow-up for a highly diverse longitudinal US cohort of 1 million people: The All of Us Research Program (Preprint);2024-05-03

5. Development and validation of a stakeholder-driven, self-contained electronic informed consent platform for trio-based genomic research studies;2024-05-03