Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study

Author:

Kraft Stephanie A.1ORCID,Porter Kathryn M.2ORCID,Duenas Devan M.2ORCID,Guerra Claudia3,Joseph Galen3ORCID,Lee Sandra Soo-Jin4ORCID,Shipman Kelly J.2,Allen Jake5,Eubanks Donna5,Kauffman Tia L.6,Lindberg Nangel M.6,Anderson Katherine7,Zepp Jamilyn M.6,Gilmore Marian J.6,Mittendorf Kathleen F.6,Shuster Elizabeth8,Muessig Kristin R.6,Arnold Briana6,Goddard Katrina A.B6,Wilfond Benjamin S.1

Affiliation:

1. Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Hospital and Research Institute, and Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA

2. Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Hospital and Research Institute, Seattle, Washington, USA

3. Department of Anthropology, History and Social Medicine, University of California, San Francisco, California, USA

4. Division of Ethics, Department of Medical Humanities and Ethics, Columbia University, New York, New York, USA

5. IT (Information Technology) Department, Kaiser Permanente Northwest, Center for Health Research, Portland, Oregon, USA

6. Department of Translational and Applied Genomics, Kaiser Permanente Northwest, Center for Health Research, Portland, Oregon, USA

7. Denver Health Ambulatory Care Services, Denver, Colorado, USA

8. Research Data and Analysis Center, Kaiser Permanente Northwest, Center for Health Research, Portland, Oregon, USA

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

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