A systematic review and qualitative synthesis of the experiences of parents of individuals living with Duchenne muscular dystrophy
Author:
Affiliation:
1. Department of Psychology, Queen’s University Belfast, Belfast, Northern Ireland
2. MRC Centre for Neuromuscular Diseases, UCL Institute of Neurology, National Hospital for Neurology and Neurosurgery, London, UK
Funder
NIHR Biomedical Research Centre at UCLH.
Publisher
Informa UK Limited
Subject
Rehabilitation
Link
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2022.2060336
Reference68 articles.
1. Duchenne and Becker muscular dystrophy in adolescents: current perspectives
2. The burden, epidemiology, costs and treatment for Duchenne muscular dystrophy: an evidence review
3. A review of quality of life themes in Duchenne muscular dystrophy for patients and carers
4. Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries
5. Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan
Cited by 9 articles. 订阅此论文施引文献 订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
1. Factors Associated With Early Motor Function Trajectories in DMD After Glucocorticoid Initiation;Neurology;2024-05-28
2. “You Take This Day by Day, Come What May”: A Qualitative Study of the Psychosocial Impacts of Living with Duchenne Muscular Dystrophy;Advances in Therapy;2024-05-06
3. Assessing the Benefits and Harms Associated with Early Diagnosis from the Perspective of Parents with Multiple Children Diagnosed with Duchenne Muscular Dystrophy;International Journal of Neonatal Screening;2024-04-15
4. Young Adults and Parents’ Coping With Duchenne/Becker Muscular Dystrophy: A Focus Group Study;Emerging Adulthood;2024-03-26
5. Economic Evaluations of Treatments for Duchenne Muscular Dystrophy: The Caregiver QALY Trap;PharmacoEconomics;2024-03-05
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线，采集、加工和组织学术论文而形成的新型学术文献查询和分析系统，可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容，当前同舟云学术共收录了国内外主流学术期刊6万余种，收集的期刊论文及会议论文总量共计约1.5亿篇，并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询！咨询电话：010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3