Development and validation of the patient-reported “Facial Function Scale” for facioscapulohumeral muscular dystrophy-Reference-Cited by-同舟云学术

Development and validation of the patient-reported “Facial Function Scale” for facioscapulohumeral muscular dystrophy

Published:2022-05-16 Issue:9 Volume:45 Page:1530-1535
ISSN:0963-8288
Container-title:Disability and Rehabilitation
language:en
Short-container-title:Disability and Rehabilitation

Author:

Mul Karlien¹,Wijayanto Feri²³,Loonen Tom G. J.¹⁴,Groot Perry²,Vincenten Sanne C. C.¹,Knuijt Simone⁵,Groothuis Jan T.⁵,Maal Thomas J. J.⁴,Heskes Tom²,Voermans Nicol C.¹,Engelen Baziel G. M. van¹

Affiliation:

1. Department of Neurology, Donders Institute for Brain, Cognition, and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands

2. Institute for Computing and Information Sciences, Radboud University, Nijmegen, The Netherlands

3. Department of Informatics, Universitas Islam Indonesia, Yogyakarta, Indonesia

4. Department of Oral and Maxillofacial Surgery, Radboudumc 3D-Lab, Radboud University Nijmegen Medical Center, Nijmegen, The Netherlands

5. Department of Rehabilitation, Donders Institute for Brain, Cognition, and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands

Funder

Prinses Beatrix Spierfonds

FSHD Stichting

Publisher

Informa UK Limited

Subject

Rehabilitation

Link

https://www.tandfonline.com/doi/pdf/10.1080/09638288.2022.2066208

Reference26 articles.

1. What's in a name? The clinical features of facioscapulohumeral muscular dystrophy

2. Effects of weakness of orofacial muscles on swallowing and communication in FSHD

3. It’s not just physical: a qualitative study regarding the illness experiences of people with facioscapulohumeral muscular dystrophy

4. Fatigue in facioscapulohumeral muscular dystrophy: a qualitative study of people’s experiences

5. Sezer S, Cup EHC, Roets-Merken LM, et al. Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study. Disabil Rehabil. 2021;1–8.

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