Group intervention programs and their impact on well-being and quality-of-life for adults living with a rare or orphan disease – realist review of literature
Author:
Affiliation:
1. Psychologie, Université du Québec à Montréal, Montréal, Canada
Funder
Fondation du grand défi Pierre Lavoie
Publisher
Informa UK Limited
Subject
Rehabilitation
Link
https://www.tandfonline.com/doi/pdf/10.1080/09638288.2022.2104943
Reference74 articles.
1. Insern. Orphanet 2021. April 7. Available from: https://www.orpha.net/consor/cgi-bin/index.php?lng=FR.
2. Exploring quality of life in Italian patients with rare disease: a computer-aided content analysis of illness stories
3. Living with a rare disorder: a systematic review of the qualitative literature
4. The burden of amyloid light chain amyloidosis on health-related quality of life
5. Health-related quality of life among adults with diverse rare disorders
Cited by 1 articles. 订阅此论文施引文献 订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
1. Connect-ROD – development and qualitative evaluation of a community-based group intervention to support well-being in patients with a rare or orphan disease;Orphanet Journal of Rare Diseases;2024-07-05
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