Psychological and Ethical Challenges of Introducing Whole Genome Sequencing into Routine Newborn Screening: Lessons Learned from Existing Newborn Screening-Reference-Cited by-同舟云学术

Psychological and Ethical Challenges of Introducing Whole Genome Sequencing into Routine Newborn Screening: Lessons Learned from Existing Newborn Screening

Published:2022-10-01 Issue:1 Volume:29 Page:52-74
ISSN:2050-2877
Container-title:The New Bioethics
language:en
Short-container-title:The New Bioethics

Author:

Ulph Fiona¹^ORCID,Bennett Rebecca²^ORCID

Affiliation:

1. Division of Psychology & Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK

2. Centre for Social Ethics and Policy, Department of Law, School of Social Sciences, Faculty of Humanities, University of Manchester, Manchester, UK

Publisher

Informa UK Limited

Subject

Issues, ethics and legal aspects

Link

https://www.tandfonline.com/doi/pdf/10.1080/20502877.2022.2124582

Reference109 articles.

1. ABC V St George’s Healthcare NHS Foundation Trust, 2017. In: 336, E. C. (ed.).

2. Incidental findings in clinical genomics: a clarification

3. The choice not to undergo genetic testing for Huntington disease: Results from the PHAROS study

4. Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process

5. Development and validation of the Psychological Adaptation Scale (PAS): Use in six studies of adaptation to a health condition or risk

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