1. Department of Medical Oncology, Radboud University Medical Center, Nijmegen, The Netherlands;
2. Division of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands;
3. Division of Clinical Studies, Institute of Cancer Research/Royal Marsden Hospital, London, UK;
4. Department of Medical Oncology, Netherlands Cancer Institute, Amsterdam, The Netherlands;
5. EHE Rare Cancer Charity, Surrey, UK;
6. Netherlands Comprehensive Cancer Organization, Utrecht, The Netherlands;
7. CoRPS – Center of Research on Psychology in Somatic diseases/Department of Medical and Clinical Psychology, Tilburg University, Tilburg, The Netherlands;
8. EHE Foundation, Anchorage, Alaska, USA