The ethics of patient and public involvement across the research process: towards partnership with people with aphasia-Reference-Cited by-同舟云学术

The ethics of patient and public involvement across the research process: towards partnership with people with aphasia

Published:2021-03-31 Issue: Volume: Page:1-27
ISSN:0268-7038
Container-title:Aphasiology
language:en
Short-container-title:Aphasiology

Author:

Hersh Deborah¹²^ORCID,Israel Mark³⁴,Shiggins Ciara⁵⁶⁷

Affiliation:

1. Speech Pathology, School of Medical and Health Sciences, Edith Cowan University, Perth, Australia

2. School of Allied Health Science and Practice, Adelaide University, Adelaide, Australia

3. Australasian Human Research Ethics Consultancy Services, Australia

4. University of Western Australia, Perth, Australia

5. Centre of Research Excellence in Aphasia Recovery and Rehabilitation, La Trobe University, Melbourne, Australia

6. School of Allied Health, Human Services and Sport, La Trobe University, Australia

7. School of Health Sciences, University of East Anglia, Norwich, UK

Publisher

Informa UK Limited

Subject

LPN and LVN,Neurology (clinical),Neurology,Linguistics and Language,Developmental and Educational Psychology,Language and Linguistics,Otorhinolaryngology

Link

https://www.tandfonline.com/doi/pdf/10.1080/02687038.2021.1896870

Reference107 articles.

1. Allen, G. & Ehrlich, C. (2019). We respect you we just don’t need to hear from you any more: Should the consumer and their community participate in research as partners instead of just being subjects? Research Ethics Monthly. 21 June. https://ahrecs.com/research-integrity/we-respect-you-we-just-dont-need-to-hear-from-you-any-more-should-the-consumer-and-their-community-participate-in-research-as-partners-instead-of-just-being-subjects

2. Exploring Central Philosophical Concepts in Benefit Sharing: Vulnerability, Exploitation and Undue Inducement

3. Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS) (2020). AIATSIS code of ethics for Aboriginal and Torres Strait Islander research. ISBN (ePDF): 9781925302363. https://aiatsis.gov.au/sites/default/files/2020-10/aiatsis-code-ethics.pdf

4. Recruiting and Retaining People With Disabilities for Qualitative Health Research: Challenges and Solutions

5. An Ethical Agenda in Disability Research: Rhetoric or Reality?

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