Towards a Governance Framework for Brain Data

Author:

Ienca Marcello,Fins Joseph J.,Jox Ralf J.,Jotterand Fabrice,Voeneky Silja,Andorno Roberto,Ball Tonio,Castelluccia Claude,Chavarriaga Ricardo,Chneiweiss Hervé,Ferretti Agata,Friedrich Orsolya,Hurst Samia,Merkel Grischa,Molnár-Gábor Fruzsina,Rickli Jean-Marc,Scheibner James,Vayena Effy,Yuste Rafael,Kellmeyer PhilippORCID

Abstract

AbstractThe increasing availability of brain data within and outside the biomedical field, combined with the application of artificial intelligence (AI) to brain data analysis, poses a challenge for ethics and governance. We identify distinctive ethical implications of brain data acquisition and processing, and outline a multi-level governance framework. This framework is aimed at maximizing the benefits of facilitated brain data collection and further processing for science and medicine whilst minimizing risks and preventing harmful use. The framework consists of four primary areas of regulatory intervention: binding regulation, ethics and soft law, responsible innovation, and human rights.

Funder

Universitätsklinikum Freiburg

Publisher

Springer Science and Business Media LLC

Subject

Psychiatry and Mental health,Health Policy,Neurology,Philosophy

Reference51 articles.

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