Attitudes and Practice of Genetic Counselors Regarding Anonymous Testing for BRCA1/2

Author:

Ader Tammy,Susswein Lisa R.,Callanan Nancy P.,Evans James P.

Publisher

Wiley

Subject

Genetics (clinical)

Reference17 articles.

1. Breast Cancer Risk Reduction. National Comprehensive Cancer Network (NCCN) Guidelines, v1, 2007. Available at: www.nccn.org/professionals/physician_gls/PDF/breast_risk.pdf .

2. Burgess, M. M., Adam, S., Bloch, M., & Hayden, M. R. (1997). Dilemmas of anonymous predictive testing for Huntington disease: privacy vs. optimal care. American Journal of Medical Genetics, 71, 197–201.

3. Coalition for Genetic Fairness. (2008). How Does GINA impact ME? February 1, 2009 from http://www.geneticfairness.org/ginaresource_impact.html#1 .

4. Genetic and Health Insurance State Anti-Discrimination Laws. (January 2008). National Conference of State Legislators. Retrieved February 22, 2008 from http://www.ncsl.org/programs/health/genetics/ndishlth.htm .

5. Genetic Information Nondiscrimination Act of 2008 (GINA): Information for researchers and healthcare professionals. (April 2009). National Human Genome Research Institute. Retrieved July 17, 2009, from http://www.genome.gov/Pages/PolicyEthics/GeneticDiscrimination/GINAInfoDoc.pdf .

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