What Counts as Effective Genetic Counselling for Presymptomatic Testing in Late-Onset Disorders? A Study of the Consultand’s Perspective

Author:

Guimarães Lídia,Sequeiros Jorge,Skirton Heather,Paneque Milena

Publisher

Wiley

Subject

Genetics(clinical)

Reference59 articles.

1. ASHG—American Society of Human Genetics Ad Hoc Committee on Genetic Counselling. (1975). Genetic counselling. American Journal of Human Genetics, 27, 240–242.

2. Bernhardt, B., Biesecker, B., & Mastromarino, C. (2000). Goals, benefits, and outcomes of genetic counselling: client and genetic counsellor assessment. American Journal of Medical Genetics, 94, 189–197.

3. Bertakis, K. D., Roter, P., & Putnam, S. M. (1991). The relationship of physician medical interview style to patient satisfaction. Journal of Family Practice, 32(2), 175–181.

4. Biesecker, B., & Peters, K. (2001). Process studies in genetic counselling: peering into the block box. American Journal of Medical Genetics, 106, 191–198.

5. Birch, S., & Melnikow, M. (2003). Conservative versus aggressive follow up of mildly abnormal pap smears: testing for process utility. Health Economics, 12, 879–884.

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