LQTS Parents’ Reflections About Genetic Risk Knowledge and their Need to Know or Not to Know their Children’s Carrier Status
Author:
Publisher
Wiley
Subject
Genetics (clinical)
Link
http://link.springer.com/content/pdf/10.1007/s10897-014-9727-2
Reference24 articles.
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2. Andorno, R. (2004). The right not to know: an autonomy based approach. Journal of Medical Ethics, 30(5), 435–439. discussion 439-440.
3. Arnestad, M., Crotti, L., Rognum, T. O., Insolia, R., Pedrazzini, M., Ferrandi, C., & Schwartz, P. J. (2007). Prevalence of long-QT syndrome gene variants in sudden infant death syndrome. Circulation, 115(3), 361–367.
4. Arribas-Ayllon, M., Sarangi, S., & Clarke, A. (2008). The micropolitics of responsibility visa—vis autonomy: parental accounts of childhood genetic testing and (non)disclosure. Sociology of Health & Illness, 30(2), 255–271. doi: 10.1111/j.1467-9566.2007.01037.x .
5. DeMarco, T. A., & McKinnon, W. C. (2006). Life after BRCA1/2 testing: family communication and support issues. Breast Disease, 27, 127–136.
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