Reproductive Decision Support: Preferences and Needs of Couples at Risk for Hereditary Cancer and Clinical Geneticists

Author:

Reumkens KellyORCID,van Oudheusden A. J. G.,Gietel-Habets J. J. G.,Tummers M. H. E.,de Die-Smulders C. E. M.,van Osch L. A. D. M.

Funder

KWF Kankerbestrijding

Publisher

Wiley

Subject

Genetics (clinical)

Reference20 articles.

1. Bekker, H. L., Winterbottom, A., Buttow, P., Dillard, A., Feldman-Stewart, D., Fowler, J., et al. (2012) Using personal stories. In: R. Volk & H. Llewellyn-Thomas (Ed.). Update of the International Patient Decision Aids Standards (IPDAS) Collaboration’s background document. Chapter E. Available from: http://ipdas.ohri.ca/resources.html

2. Bekker, H. L., Winterbottom, A. E., Butow, P., Dillard, A. J., Feldman-Stewart, D., Fowler, F. J., et al. (2013). Do personal stories make patient decision aids more effective? A critical review of theory and evidence. BMC Medical Informatics and Decision Making, 13(2), S9. https://doi.org/10.1186/1472-6947-13-S2-S9 .

3. Chan, J. L., Johnson, L. N. C., Sammel, M. D., et al. (2016). Reproductive decision-making in women with BRCA1/2 mutations. Journal Genetic Counselling, 1–10. https://doi.org/10.1007/s10897-016-0035-x .

4. Coulter, A., Kryworuchko, J., Mullen, P., Ng, C. J., Stilwell, D., van der Weijden, T. (2012) Using a systematic development process. In R. Volk & H. Llewellyn-Thomas (Ed.). Update of the International Patient Decision Aid Standards (IPDAS) Collaboration’s background document. Chapter A. Available from: http://ipdas.ohri.ca/resources.html .

5. Coulter, A., Stilwell, D., Kryworuchko, J., Mullen, P. D., Ng, C. J., & van der Weijden, T. (2013). A systematic development process for patient decision aids. BMC Medical Informatics and Decision Making, 13(Suppl 2), S2. https://doi.org/10.1186/1472-6947-13-S2-S2 .

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