The Right to Participate in Decision Making: Supported Decision Making in Practice

Author:

Bigby Christine

Abstract

AbstractIdeas about capacity and incapacity have dominated thinking about participation in decision making by people with intellectual disabilities. The United Nations Convention on the Rights of Persons with Disabilities provoked interest in the concept of supported decision making and the rights of all people with disabilities to be involved in making decisions about their own lives. Decisions vary in many ways—scope, individual significance or time frame—as does the type of support needed to participate in making them. This chapter reviews the contested nature of supported decision making and proposes a principled approach that puts the will and preferences of the person with disability at the centre of all decisions and includes all people with disabilities irrespective of whether they can express their preferences or rely on others to interpret them. It alerts service providers to the varied landscapes of decisions making and explains an evidence based practice framework for supporting decision making that is applicable across all types of decisions and contexts.

Publisher

Springer Nature Singapore

Reference25 articles.

1. Australian Law Reform Commission. (2014). Equality, capacity and disability in commonwealth Laws: Final report. Australian Government.

2. Bigby, C. (2020). Dedifferentiation and people with intellectual disabilities in the Australian National Disability Insurance Scheme: Bringing research, politics and policy together. Journal of Intellectual and Developmental Disability, 45(4), 309–319. https://doi.org/10.3109/13668250.2020.1776852

3. Bigby, C., Carney, T., Then, S.-N., Wiesel, I., Sinclair, C., Douglas, J., & Duffy, J. (2023). Diversity, dignity, equity and best practice: A framework for supported decision-making. Living with Disability Research Centre, La Trobe University: Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability. https://disability.royalcommission.gov.au/publications/diversity-dignity-equity-and-best-practice-framework-supported-decision-making

4. Bigby, C., Douglas, J., & Hamilton, L. (2018). Overview of literature about enabling risk for people with cognitive disabilities in context of disability support services.

5. Bigby, C., Douglas, J., & Smith, E. (2022). Considering human rights in decision making: Evaluation of the introduction of structured-decision making framework in the public trustee Queensland. Living with Disability Research Centre, La Trobe University.

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