Underserved and Undermeasured: a Mixed-Method Analysis of Family-Centered Care and Care Coordination for Low-Income Minority Families of Children with Autism Spectrum Disorder

Author:

Wagner Stephanie,Rubin I. Leslie,Singh Jennifer S.ORCID

Funder

Children's Healthcare of Atlanta (US) and Georgia Institute of Technology

Ivan Allen College of Liberal Arts, Georgia Institute of Technology

Publisher

Springer Science and Business Media LLC

Subject

Public Health, Environmental and Occupational Health,Health Policy,Sociology and Political Science,Anthropology,Health(social science)

Reference48 articles.

1. Karst JS, Van Hecke AV. Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation. Review Clin Child Fam Psychol Rev. 2000;15:247–77. https://doi.org/10.1007/s10567-012-0119-6.

2. Bramlett MD, Blumberg SJ, Ormson AE, George JM, Williams KL, Frasier AM, et al. Design and operation of the National Survey of Children with Special Health Care Needs, 2009-2010. Vital Health Stat 1. 2014;57:1–271.

3. The Child and Adolescent Health Measurement Initiative, Johns Hopkins Bloomberg School of Public Health. Experience matters: a view into the health and wellbeing of US children and families with autism spectrum disorder (ASD). 2016. https://childhealthdata.org/docs/default-source/cahmi/asdchartbookfinal.pdf?sfvrsn=2. Accessed 23 May 2020.

4. Vanegas SB, Abdelrahim R. Characterizing the systems of support for families of children with disabilities: a review of the literature. J Fam Soc Work. 2016;19:286–327. https://doi.org/10.1080/10522158.2016.1218399.

5. Benevides TW, Carretta HJ, Lane SJ. Unmet need for therapy among children with autism spectrum disorder: results from the 2005-2006 and 2009-2010 National Survey of Children with Special Health Care Needs. Matern Child Health J. 2016;20:878–88. https://doi.org/10.1007/s10995-015-1876-x.

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