The Scoliosis Research Society adult spinal deformity standard outcome set
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Published:2021-04-06
Issue:5
Volume:9
Page:1211-1221
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ISSN:2212-134X
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Container-title:Spine Deformity
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language:en
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Short-container-title:Spine Deform
Author:
de Kleuver MarinusORCID, Faraj Sayf S. A.ORCID, Haanstra Tsjitske M.ORCID, Wright Anna K.ORCID, Polly David W.ORCID, van Hooff Miranda. L.ORCID, Glassman Steven D.ORCID, Alanay Ahmet, Basu Saumyajit, Bess Shay, Brodke Darrel, Carreon Leah Y., De Kleuver Marinus, Defino Helton L. A., Faraj Sayf S. A., Glassman Steven D., Gehrchen Martin, Gupta Munish C., Haanstra Tsjitske M., Hai Yong, Halm Henry F. M., Harding Ian, Lafage Virginie, Liu Gabriel, Matsumoto Morio, Obeid Ibrahim, Parent Stefan, Pellisé Ferran, Place Howard M., Polly David W., Rothenfluh Dominique A., Sethi Rajiv, Spruit Maarten, Stephen Lewis J., Uribe Juan S., Van Hooff Miranda L., Wright Anna K., Yagi Mitsuru, Zhu Zezhang,
Abstract
Abstract
Purpose
Symptomatic adult spinal deformity (ASD) with an extremely variable presentation with pain, with and without neurogenic leg pain, and/or disturbed sagittal and coronal balance, causes a significant societal burden of disease. It is an important consequence of the aging adult population, generating a plethora of spine-related interventions with variable treatment efficacy and consistently high costs. Recent years have witnessed more than a threefold increase in the prevalence and treatment of ASD, and further increases over the coming decades are expected with the growing elderly population worldwide. The ability to monitor and assess clinical outcomes has not kept pace with these developments. This paper addresses the pressing need to provide a set of common outcome metrics for this growing group of patients with back pain and other disabilities due to an adult spinal deformity.
Methods
The standard outcome set was created by a panel with global representation, using a thorough modified Delphi procedure. The three-tiered outcome hierarchy (Porter) was used as a framework to capture full cycle of care. The standardized language of the International Classification of Functioning, Disability and Health (WHO-ICF) was used.
Results
Consensus was reached on a core set of 25 WHO-ICF outcome domains (‘What to measure’); on the accompanying globally available clinician and patient reported measurement instruments and definitions (‘How to measure’), and on the timing of the measurements (‘When to measure’). The current work has brought to light domains not routinely reported in the spinal literature (such as pulmonary function, return to work, social participation), and domains for which no adequate instruments have yet been identified (such as how to clinically quantify in routine practice lumbar spinal stenosis, neurogenic claudication, radicular pain, and loss of lower extremity motor function).
Conclusion
A standard outcome set was developed for patients undergoing treatment for adult spinal deformity using globally available outcome metrics. The current framework can be considered a reference for further work, and may provide a starting point for routine methodical and systematic monitoring of outcomes. Post-COVID e-health may accelerate the routine capture of these types of data.
Funder
Scoliosis Research Society
Publisher
Springer Science and Business Media LLC
Subject
Orthopedics and Sports Medicine
Reference29 articles.
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